Last night Mom slept awesome!! She got some pain med last night around 11 and then got a boost of pain med around midnight. She then slept through the night and woke up at 2:30 to get some more pain med. She then slept until 7 am, but only woke up because the nurse came in for vitals.
Dr. Aronson, who is her oncologist, came to discuss mom's case this morning and we found out some not so good news. Yesterday, they told us that mom had Spindle Cell Sarcoma- but that is not the case. She does not have spindle cell sarcoma. Dr. Aronson said that the pathology report came back as- poorly differentiated malignant neoplasms- which in normal people terms means: We don't know what the hell she has for cancer because the biopsy sample was not good enough.
What he could tell us was that she has solid tumors in: her brain (5 total with smaller ones affecting her eyes, speech, and emotions), lungs (with one tumor growing into her bone), lymph nodes (including her chest, abdomen, and pelvis), Uterus, Spleen, Thyroid Gland, and it is attacking her muscles and connective tissue.
Dr. Aronson said that at this point he does not have enough info so he has scheduled mom to go through more test. She had an MRI, is going to have more blood work done, and another biopsy. They are going to put in a Pick Line so they do not have to keep poking her with needles for blood work. The pick line will also be used for her IV fluids. Once all of the new tests are done we should get the results back in a week. Hopefully, then we will have a damn label to put on this cancer. I would feel better if there was a label to what mom has so i could al least research it and have a better understanding. They are also going to schedule some physical therapy to get her up and walking around. They also feel that physical therapy will help with the weakness she feels in her legs.
They are continuing with full head radiation and she had another treatment today. She said it went well. She also likes the tech guys down at radiation because they crank Billy Joel while they prep her and tell her to get down and boogie. haha. You have to find humor in the little things. For instance i dyed a strip of my hair in the back purple for cancer awareness and mom just had a hoot looking at it. She said it was cool. I was happy to see her smile.
I think that is all for know until tomorrow. I hope she has another good night and i hope tomorrow gives us better news. Thank you to all of our family, friends, and wonderful staff here on the Gibson Pavilion. We appreciate all of your love and support during this time. Positive thinking gets us far and so does Mom's will to fight. Love you, Jess
Hi Jess. I wanted to say thank you for writing these entries.. it helps keep updated and I can pass the info to my mom and dad.. (Sharon and Mike).
ReplyDeleteYour Mom has been in my thoughts constantly since I got the news on Sunday.
AND! I want purple in my hair .. JUST FOR HER! I swear, if I can find it, I will do it!!! *before long, there will be a bunch of purple haired people! wouldnt that be cool.*
Please hug her for me. Its been a while since we talked but she is still in my prayers. <3
Beckie
Our prayer chain is extending to Jeff's family in Michigan so she is in good hands! Keep the blog updated and know that you are loved.
ReplyDeleteStay strong,
Jessica, Jeff, and Reid DeJongh
(Jess, your Dad married us and I worked with him in Durham. An amazing family, you are.)
Sending you all sunny and warm healing thoughts from Florida...
ReplyDeletePeace and Light,
Deena
healing thoughts and prayers are being sent your way. May you find the strength and support to carry you along this path
ReplyDeleteKaren White